Showing posts with label family mothers. Show all posts
Showing posts with label family mothers. Show all posts

Wednesday, January 14, 2009

Why Do We Hold Onto Our Loved One's Belongings?

I’m a keeper. I didn’t know I would be, but I can’t imagine parting with Daddy’s jacket.

It’s brick-red suede, and has completely worn through at the edge of the sleeves. It no longer smells of him, but I keep it.

I remember when I was a child, riding with him to Sears on Saturday morning just to buy salted peanuts and look at the tools in the tool department. He wore that jacket. I was adopted and maybe that makes me more sentimental, I don’t know, but keeping my past is important to me.

I also have his Bible, his wallet, his watch, his glasses, and a yellow shirt I remember him in.

I have lots of items that was my mother’s–her mink coat, her Russian coat, purses, jewelry, a Sunday suit, and more Bibles. (My mother was a preacher, so trust me when I say she had lots of Bibles).

I also have their photos, letters, recipes, Daddy’s old tool chest, the first gift he ever gave her when she was just 14–it’s a small cedar box that’s in the shape of a heart. If my math is right, he gave it to her in 1925. I can tell the story of how they met as if it were my own.

Why do we keep our loved one’s clothes?

Like a child’s ratty blanket, we hold on. Safety, security, identity.

Our momentos are in boxes, on shelves, in cabinets, and I know I keep way too much, but how do you let go of such things?

It’s all I have now, and I believe that by pulling out Daddy’s coat or by pinning on one of my mother’s broaches, I can see them clearer, remember better.

I remember Daddy’s bushy eyebrows, the thickness of his fingers and how I could barely squeeze my child fingers through his. I remember that jacket and how he’d wear it when we went to see his family–his sister and brother every Sunday afternoon. His faithfulness amazed me then. His loyalty and tenderness is something I value in a man.

There are issues with keeping things. Psychologists might tell you that you’re not moving on, not making room for the new. I understand the logic. A friend recently visited my home. I hadn’t seen her since my mom was alive and she commented on how much my house had changed. My mom’s antiques are no longer on display. Some have been give to other family members, others sold. This is a slow process–for me.

It no longer looks like my mother’s house. After moving my mother and her 40 years of not moving, her collections oozed out of every crevice. I barely had room for “me.” My mother was one powerful woman. She had a way of taking over. I let her reign, so to speak. As her daughter and in those last few years, caregiver, I learned how to hold my ground and still allow her to feel as if she had some independence.

But now, I have a new couch, a new dining room table. Her furniture has been divvied up among my daughters. I’ve reclaimed my throne, so to speak.

Ironically, I consider myself more of a futurist than a person who lives in the past. I lean toward modern/eclectic design and and music and I’ve made a slew of six month, one year, five year, and then year plans, always writing my future. I’m a list maker–a list for the day, the week, the month, sometimes two a day. I like noting the little things I’ve accomplished. I’ll write something down I just thought of just to get the thrill of crossing it out.

But when it comes to my parents, I’m a keeper, but it no longer keeps me in the past. I’ don’t think I fall iinto thecategory of “not moving on.”

I like to think of their clothes and personal items as a cushion to my life. As if they somehow support me and connect me. Just one look at that jacket and I’m four again. No other Bible comforts me like Daddy’s. I don’t need to even open it to feel a sense of guidance.

It takes time to get to a place to let go of at least a few things.

After your loved one dies, part of grief is when you still try to live in your old life with old clothes and the way things used surrounding you.

You weren’t ready for him to die. You don’t want to date, get a new job, or have to figure out what to do with yourself next Christmas. You don’t want to move on.

Some people get rid of things too soon. Others, too late–it’s different for each person. Finally, you begin to make your own way. Reinvent yourself. Find who you are–now. They are in you, a part of you, but you are changed. You have to go on.

What’s the time frame? Varies. I know people who were clearing out closets before the funeral. I know others who open a closet ten years later–and there’s everything just as it was. Of course, there’s always a chance of getting stuck and not being able to let go. You run that risk.

For many, somewhere around or after that first year mark, things shift–a little. You don’t have to make yourself do everything. Some things come a little easier. A little. For others, it’s two, three years before they can feel anything but blinding loss.

But somewhere along the line, you let go of a few things. You call up a family member and offer them a book or a knick-knack. You sell something, drop items off at Goodwill or another charity.

You live with the empty space for awhile before you figure out how to fill your life again. And the items you keep become more intended, more precious. They go in top drawers and the chest that sits in the guest bedroom. You leave out a few photos, a book–a silver comb that sits on your dresser.

Your loved one is now incorporated. Their clothes, their memories are a part of you, in your house so to speak–but they have a place and not like a box you trip over whenever you walk into a room. Anytime you need to, you can slide open a draw and remember. Find comfort.

And now, there’s also room for something new.

~Carol D. O’Dell, Family Advisor at Caring.com

Author, Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir,available on Amazon

Monday, April 7, 2008

Three Sure Signs Your Loved One is Ready for Hospice

You think your doctor will tell you when your loved one needs hospice?

They should know, right?

Not always the case.

I asked my mother’s doctor about hospice (Alzheimer’s and Parkinson’s) months beforehand and was “poo-pooed” away. Mother had a great way of rallying herself together for doctor visits, but I lived with her, cared for her 24/7, and I was beginning to see a shift.

I knew my mother had taken a turn. I knew that both of us were over the tests, treatments, and hospital rigamarole. I knew, in essence, that she had given up the will to live.


Alzheimer’s does more to a person’s body than simply making them forget names and current events. They forget things at a molecular level as well. They forget what to do with a spoon, how to chew and swallow. These symptoms don’t just come and stay–like early dementia, it comes and goes. That makes it easier to dismiss it, deny it, and hope it isn’t true.


Some days, my mom was pretty alert and could at least remember to put whatever food was in her hand into her mouth. Although her ability to remember me or where she lived seemed permanently lost, her body could still manage biological urges.


On other days, that natural reaction of opening your mouth when food comes near–was gone. That’s a tough realization.

For the most part, Mother was still mobile, or at least trying to be. She had this incredible drive to walk, stand up, and I know that for her, Alzheimer’s had a dimension of added aggitation. Some Alzheimer’s patients pace, exhibit unbelievable strength, and can go with limited sleep.

It’s one of those diseases that can manifest itself differently in different people. Some are babblers, curse like sailors, say and do apprehensible sexual things, blurt out inappropriate racial comments. Others are silent. They’re entombed and barely ever move.

Same disease, different brains.

But how do you know as a family member/caregiver that it’s time to call hospice?

First, the working definition of hospice or palliative care is: your loved one has a “life limiting condition.” Their words, not mine. While it’s technically correct, and I can’t think of a better way to say it, it still sounds odd.

In layman’s terms, most people think it means your loved one has a diagnosis of less than six months to live, and with some hospice situations, a year. While that’s technically true, some people receive hospice or palliative services for much longer.


The difference in hospice and palliative care is that palliative care specializes in the relief of the pain, symptoms and stress of serious illness.

Hospice care always provides palliative care. Hospice focuses on terminally ill people who no longer seek treatments to cure them and who are expected to live for a year or less.

Three signs That Indicate Your Loved One is Ready For Hospice:


1. The disease has progressed to the point that there’s no cure, and you’ve decided to make your loved one comfortable and not actively seek to treat the disease.

2. You and your loved one chooses to forego any further testing of hospitalizations and will allow the dying process to happen naturally.

3. You’re ready to begin to let go, say good bye, and follow the oath of hospice, which is to “neither hinder, not hasten death.”


Check out www.nhpco.org, website for National Hospice and Palliative Care Organization for more information.

Caring Connections also shares this advice: (www.caringconnections.com)

“Anyone can inquire about hospice services. You or your loved one may call a local hospice and request services. The hospice staff will then contact your physician to determine if a referral to hospice is appropriate. Another way to inquire about hospice is to talk with your physician, and he or she can make a referral to hospice.Hospice can begin as soon as a ‘referral’ is made by the person’s doctor.

The hospice staff will then contact the person referred to set up an initial meeting to review the services the hospice will offer and sign the necessary consent forms for care to begin. Usually, care is ready to begin within a day or two of a referral. However, in urgent situations, service may begin sooner.

When is the right time to ask about hospice?
Now is the best time to learn more about hospice care and ask questions about what to expect. Although end-of-life care may be difficult to discuss, it is best for loved ones and family members to share their wishes long before it becomes a concern. This can greatly reduce stress when the time for hospice becomes apparent. When is the right time to ask about hospice?

By having these discussions in advance, uncomfortable situations can be avoided. Instead, educated decisions can be made that include the advice and input of loved ones.”

Shannon Martin of Aging Wisely shares:

Just recently when my Grandmother died, my aunt (who is a geriatric nurse) said, “I don’t know that it’s time for Hospice yet” even when my Grandmother had stopped eating and they had decided no more hospitalizations, tests etc.”


This shows there’s some denial, even among professionally trained individuals, especially when it involves their own family. Accepting that the end is near, that you will begin to have to let go, to sit quietly by a loved one’s bedside, to not go into “heroics” and throw on the paddles or rush to the ER is very, very difficult.


The last month of my own mother’s life was in many ways one of the most peaceful times of my life. It was also excruciating. As a society, we’re no longer taught to sit with death.

We’re no longer taught to let nature take its course, to relinquish our control. Learning to do this, to hear the clock tick, to let my family come and go as I sat by my mother’s bed and wiped her brow–

It was a finishing of something I had begun.

It was bone deep and cathartic, and gave me time to think and process.

I began to see the whole of my mother’s life.

It wasn’t only what hospice did for me or for my mom, it was what they stood for, the permission they gave us all to let go in love.

~Carol D. O’Dell

Author of Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir

available on Amazon

www.mothering-mother.com

www.kunati.com

Tuesday, March 4, 2008

What's a Dry Run? Feeling Duped

Caregivers who have made it to the end stage are fitful, worn out creatures who shouldn’t be messed with.

The "dry run" I’m talking about when you think your loved one is going to pass away, and you call all the family, cry, say good-bye…and then they rally back to health.

You think you’d be relieved, but you’re exhausted, and if you’re like me, I felt a duped. Punked, like the new TV show calls it.

We had already called hospice which was extremely upsetting because it means you face that the end is near.

I could barely say the word, “hospice” at first.

Calling all my mother’s family was grueling–to say this again, and again–”I don’t think mother’s going to be here much longer.”

I cleaned her room, bought new curtains, made things simpler, gathered photos for her memorial service, prepared my kids.

Things got worse: she wasn’t eating and I sat by her bed and drizzled melted ice cream bars into her barely parted lips. My back ached. I grappled with the idea of a feeding tube and decided not to. She had stated on her living will not to, but it was excruciating to wonder if I had done the right thing. I wiped her face, stroking her tissue paper skin.

I stopped everything–going anywhere. Cooking–my daughters took over for me. Church–we all felt weighted and no one knew exactly what to do with ourselves. Everyone just sat on the couch…waiting. I lived off of strong coffee.

That lasted for about three days–and nights.

I wake the next morning, and she’s standing next to her little kitchen area.

She looks alert, asks, “What’s for breakfast?”

Now, see the whole picture before you judge my reaction:

My hair is matted to the back of my head from sleeping in the recliner next to her bed, I’m in rumpled clothes, and my mouth feels like I squeezed white glue in it. I haven’t seen the sun in days and I have no idea if my family is still in tact.

Breakfast!

I'm pretty sure I let a few curse words fly.
I was a bit miffed. Confused.

What day was it? Where was I? I scrambled eggs, made her a tray and took a shower.

Yes, I was angry, but it was good to be angry.

What do I mean by that?

Anger, ironically is a positive emotion.

You can only get angry at something you believe you can change.
Apathy is when you’ve given up.

I didn’t want my mother to die, but I felt like someone had tied a rope onto my ankle and kept pushing me off a ledge over and over again. Caregiving had taken its toll. My emotions were strung so thin I had nothing left.

I hope letting you know that a “dry run” might be in your future will give you the heads up you need not to wear yourself slap out.

You never know what’s going to happen, but many people experience a “premonition,” an event that precedes the actual time of departure.

I believe it happens for a reason. It helps us get our thoughts and hearts aligned. It helps cushion the blow.

I actually walked around for a few days a bit ticked at her.

My life felt like I was walking into a room and knowing I went there to get something/do something but couldn’t think for the love of kittens what it was I wanted.

She toodled in her apartment (built onto our house), dozed, and we chatted. It’s hard to stay mad at someone who’s living on borrowed time and doesn’t know who the heck you are.

By then, she was referring to me as “little girl,” when she could find words at all.
What did I learn?
The will has more to do with life and death than a diagnosis.

A “dry run” is a lot like what you do when you're a little kid and you go in your mom or dad's closet and try on their shoes, coat and hat. You didn't know it, but you were practicing being grown. You were trying on your future.

And besides, it felt good to be mad. I can deal with mad.
~Carol D. O’Dell

Author of Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir

Available on Amazon
www.mothering-mother.com

www.kunati.com/mothering

Tuesday, February 12, 2008

Sitting Beside Our Loved Ones as They Pass Away


The first time I sat beside someone I loved as they passed away was my adoptive daddy. He was dying of heart disease--something that had eaten at him the last decade or more of his life. I watched him pop nitro-glycerin tablets as if they were Pez candies.



But sitting beside someone in an ICU unit is much different than allowing the dying process to enter your home.



Mother and I were let in hourly--for ten minutes at a time. We sat in the orange vinyl chairs, or hovered over his hospital bed rail. I never felt as if I could get close enough.



And the nurse came and got us, told us he was going, and we stood by as he gasped his last breaths.



Sad, I know, but this too, is a part of life.



My mother's passing was different.

She passed away in my home. I sat in a recliner next to her bed. There was carpet, and although she was in a hospital bed, it was still homier. I had weeks to watch her die. Yes, it was excruciating, but it also gave me chance to climb down the mountain with her.



I've climbed mountains, real mountains, and I've learned it's not the uphill, the incline that's so hard. It's the decline when your quads are shaking, your balance is wonky, and you feel completely off kelter.


I wrote every day my mother lived with us. It kept me sane, helped me work out the enormous pressures and concerns I carried in my heart.

I allowed my family to keep living--going to swim practice, to part-time jobs, for my husband to go to work.



Life doesn't pause much, not even for death. But I sat there, that late spring, and I allowed dying to take up residence.



I wrote in my book, Mothering Mother:



Where are you, Mother? What’s going on?



I’m tired, but I’m more worried than tired. You won’t eat and it’s hard just letting you lie there not eating. The hospice nurse said not to force it and it felt fine when we were talking about it, but it doesn’t feel fine now.


Are you dying? Is this it? Are you taking those final steps or is this just another dip and turn? I don’t know; maybe it’s not for me to know. I’ve been back to your room two dozen times this morning. I can’t stay,



I just keep pacing, adjusting your pillow and cover like it’s going to help. I brush your hair back and look into your eyes, wondering if I’ve lost you for good.



I'm ironically grateful for this experience. I've sat beside my mother. I've read her Psalms, moistened her lips, bathed her hands and forehead. I didn't know if I could do it--sit there like that--but I did.



It's not even as painful to think about now as I thought it might be. It's soothing in a way. It's closure.



As a caregiver, you have to eventually realize that your loved will eventually die. It's tough to face, I know.



I hope whether you're in a hospital, in a hospice facility or at home, that you too, will have the priveledge of sitting in the quiet and experiencing life--and all that it has to offer.



Carol D. O'Dell

Author of Mothering Mother: A Daughter's Humorous and Heartbreaking Memoir,

available on Amazon and in most bookstores

http://www.mothering-mother.com/