Caregivers who have made it to the end stage are fitful, worn out creatures who shouldn’t be messed with.
The "dry run" I’m talking about when you think your loved one is going to pass away, and you call all the family, cry, say good-bye…and then they rally back to health.
You think you’d be relieved, but you’re exhausted, and if you’re like me, I felt a duped. Punked, like the new TV show calls it.
We had already called hospice which was extremely upsetting because it means you face that the end is near.
I could barely say the word, “hospice” at first.
Calling all my mother’s family was grueling–to say this again, and again–”I don’t think mother’s going to be here much longer.”
I cleaned her room, bought new curtains, made things simpler, gathered photos for her memorial service, prepared my kids.
Things got worse: she wasn’t eating and I sat by her bed and drizzled melted ice cream bars into her barely parted lips. My back ached. I grappled with the idea of a feeding tube and decided not to. She had stated on her living will not to, but it was excruciating to wonder if I had done the right thing. I wiped her face, stroking her tissue paper skin.
I stopped everything–going anywhere. Cooking–my daughters took over for me. Church–we all felt weighted and no one knew exactly what to do with ourselves. Everyone just sat on the couch…waiting. I lived off of strong coffee.
That lasted for about three days–and nights.
I wake the next morning, and she’s standing next to her little kitchen area.
She looks alert, asks, “What’s for breakfast?”
Now, see the whole picture before you judge my reaction:
My hair is matted to the back of my head from sleeping in the recliner next to her bed, I’m in rumpled clothes, and my mouth feels like I squeezed white glue in it. I haven’t seen the sun in days and I have no idea if my family is still in tact.
Breakfast!
I'm pretty sure I let a few curse words fly.
I was a bit miffed. Confused.
What day was it? Where was I? I scrambled eggs, made her a tray and took a shower.
Yes, I was angry, but it was good to be angry.
What do I mean by that?
Anger, ironically is a positive emotion.
You can only get angry at something you believe you can change.Apathy is when you’ve given up.
I didn’t want my mother to die, but I felt like someone had tied a rope onto my ankle and kept pushing me off a ledge over and over again. Caregiving had taken its toll. My emotions were strung so thin I had nothing left.
I hope letting you know that a “dry run” might be in your future will give you the heads up you need not to wear yourself slap out.
You never know what’s going to happen, but many people experience a “premonition,” an event that precedes the actual time of departure.
I believe it happens for a reason. It helps us get our thoughts and hearts aligned. It helps cushion the blow.
I actually walked around for a few days a bit ticked at her.
My life felt like I was walking into a room and knowing I went there to get something/do something but couldn’t think for the love of kittens what it was I wanted.
She toodled in her apartment (built onto our house), dozed, and we chatted. It’s hard to stay mad at someone who’s living on borrowed time and doesn’t know who the heck you are.
By then, she was referring to me as “little girl,” when she could find words at all.
What did I learn?
The will has more to do with life and death than a diagnosis.
A “dry run” is a lot like what you do when you're a little kid and you go in your mom or dad's closet and try on their shoes, coat and hat. You didn't know it, but you were practicing being grown. You were trying on your future.
And besides, it felt good to be mad. I can deal with mad. ~Carol D. O’Dell
Author of Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir
Available on Amazonwww.mothering-mother.com
www.kunati.com/mothering
Showing posts with label sandwich generation. Show all posts
Showing posts with label sandwich generation. Show all posts
Tuesday, March 4, 2008
Tuesday, February 26, 2008
Caregiving Transitions--The Elder Driving Dilemma
Life changes.
Just as we get used to one thing, it no longer works, and we have to figure out the next transition.
Caregivers and the folks they love and care for experience transition in rapid succession.
It's a lot like when your child turned fifteen--they can drive with you in the car, and before you know it, they're sixteen and begging to drive alone--you aren't ready for this--or for the dating, curfews, part-time jobs, SAT preps, and BAM! They're eighteen and headed off to college.
Only three years ago they were still your baby--gangly yes, but not living in a dorm, voting, and heaven forbid, fighting a war.
Our elders also go through rapid changes. You question whether they should still drive so you drive behind them, monitor their turns and parking. Your doubts are confirmed and it's time to have the first of many BIG TALKS.
The transition from driving to not driving is oftentimes the first a caregiverr must prepare for, and I do mean prepare. It's best to have this talk as a scenario that hasn't occured yet.
"Dad--"
"What?"
"You know, you're 85 and still driving, and I think that's great, but let's face it--one day, you will most likely not be safe behind the wheel."
"I don't want to talk about it."
"We have to."
"No, we don't."
"Yes, Dad, we do. Hear me out. I love you. I want you to have your independence--I really do. I respect you immensely, and I love you and want you to be safe--and I don't want you to hurt someone else."
(silence)
"This is what I propose. I think we should do what I did with your grandson. I think you should consider driving only when someone else is in the car with you. That way, I can see how you're doing--will you do that for me?"
(silence)
Take his hand. Be quiet for a minute. Change the subject. Enough for today. Go get an ice cream.
This is the first conversation. There will be several.
He has to get used to the idea that his life is changing. He has to transition out of the life he has--and it won't be easy.
Let's think about what our loved ones are feeling:
I'm still healthy and my driving is fine, what's she talking about?
It's my car. It's paid for and I'm insured.
I only drive to the store and to church. I know my way in my sleep.
They just want my money.
Why don't they take all the drunk drivers off the road first. They're more of a menace than I am.
Once I give up driving, I'll be her prisoner.
By putting ourselves in their situation, we see how very painful having someone decide when you can no longer drive can be.
It's best if they decide when it's no longer wise to drive on their own, but in many cases, that's just not going to happen. Their judgement is impaired. They fear losing their freedom. It's teenage-hood in reverse!
What if Dad's cantankerous and won't stop driving even when it's not safe?
We'll talk about your options tomorrow.
~Carol D. O'DellAuthor of Mothering Mother: A Daughter's Humorous and Heartbreaking Memoir
available on Amazonwww.mothering-mother.com
Just as we get used to one thing, it no longer works, and we have to figure out the next transition.
Caregivers and the folks they love and care for experience transition in rapid succession.
It's a lot like when your child turned fifteen--they can drive with you in the car, and before you know it, they're sixteen and begging to drive alone--you aren't ready for this--or for the dating, curfews, part-time jobs, SAT preps, and BAM! They're eighteen and headed off to college.
Only three years ago they were still your baby--gangly yes, but not living in a dorm, voting, and heaven forbid, fighting a war.
Our elders also go through rapid changes. You question whether they should still drive so you drive behind them, monitor their turns and parking. Your doubts are confirmed and it's time to have the first of many BIG TALKS.
The transition from driving to not driving is oftentimes the first a caregiverr must prepare for, and I do mean prepare. It's best to have this talk as a scenario that hasn't occured yet.
"Dad--"
"What?"
"You know, you're 85 and still driving, and I think that's great, but let's face it--one day, you will most likely not be safe behind the wheel."
"I don't want to talk about it."
"We have to."
"No, we don't."
"Yes, Dad, we do. Hear me out. I love you. I want you to have your independence--I really do. I respect you immensely, and I love you and want you to be safe--and I don't want you to hurt someone else."
(silence)
"This is what I propose. I think we should do what I did with your grandson. I think you should consider driving only when someone else is in the car with you. That way, I can see how you're doing--will you do that for me?"
(silence)
Take his hand. Be quiet for a minute. Change the subject. Enough for today. Go get an ice cream.
This is the first conversation. There will be several.
He has to get used to the idea that his life is changing. He has to transition out of the life he has--and it won't be easy.
Let's think about what our loved ones are feeling:
I'm still healthy and my driving is fine, what's she talking about?
It's my car. It's paid for and I'm insured.
I only drive to the store and to church. I know my way in my sleep.
They just want my money.
Why don't they take all the drunk drivers off the road first. They're more of a menace than I am.
Once I give up driving, I'll be her prisoner.
By putting ourselves in their situation, we see how very painful having someone decide when you can no longer drive can be.
It's best if they decide when it's no longer wise to drive on their own, but in many cases, that's just not going to happen. Their judgement is impaired. They fear losing their freedom. It's teenage-hood in reverse!
What if Dad's cantankerous and won't stop driving even when it's not safe?
We'll talk about your options tomorrow.
~Carol D. O'DellAuthor of Mothering Mother: A Daughter's Humorous and Heartbreaking Memoir
available on Amazonwww.mothering-mother.com
Friday, February 22, 2008
How to Approach Someone With Alzheimer's or Dementia
Approaching someone with dementia or Alzheimer's takes a little finesse. Too many folks charge right up to them and get in their "personal space," perhaps because they don't realize that person's with physical or neurological challenges still do have and need personal space.
Whether your loved one lives at home and you're their primary caregiver, or if they're in a care facility, knowing how to approach them is a crucial skill for all involved.
Sometimes they don't approach them at all.
They're uncomfortable, so they stay across the room and avoid eye contact. Some people don't even go to visit their loved ones. That's sad, because they're just scared and don't know exactly what to do.
Here area few simple steps to make this situation more comfortable for everyone:
If you have or can get a name tag, it can help. Wear your name tag since many dementia patients can still read and it reminds them who you are.
Approach a dementia or Alzheimer's patient calmly, extend your hand, but realize they might not know what to do with it. If they're in a wheelchair, bend your knees and meet them at their level. If you're much taller, try and make yourself an equal.
Don't come head on--even in nature, this is considered aggressive my most mammals.
Stand a little to their side--so they feel they have some air to breathe and an escape path if they feel threatened. Also realize that if you come up behind them or directly to their side, they might not see or hear you and you may startle them. They may react by a scream or even try to hit you if they're agitated, so make sure they know you're coming up to them, then step a little to the side so they have some breathing room and don't feel "attacked." Remember the old fight or flight reaction--some people might try to run away from you if you startle them, whereas others may try to bop you a good one!
Say your name clearly and ask them theirs. If you know their name then don't ask them--tell them their name. They shouldn't feel tested or put on the spot.
"Hi, my name is Carol, and your name is Lily. It's nice to meet you."
If they're shaking your hand and want to continue to hold it, then allow them to. Some dementia/neurological folks like touch and are quite tactile. They might touch your clothes or your hair, but realize that if it goes too far, it's because they might not be able to judge appropriateness. Simply gently take their hand from the unwanted are and either hold their hand, or let go and back up just a little without drawing attention to the unwanted behaviour. Like a little kid, people like to do things they're not supposed to.
If they don't seem to want to shake hands, respect that. Some dementia/neuro-impaired folks abhor touch, so don't take it personal.
If they lose their attention and aren't interested in you, don't take it personal.
If they aren't smiling, don't take it personal.
If you are assisting them in the restroom or dressing, also stand to the side. Our elderly folk don't have as good peripheral vision and if you stand directly to their side, they may feel more of a sense of privacy. You can also leverage yourself better with one arm holding their elbow up to their shoulder and the other across their back. Remind them you're still there, but be quiet if they need their privacy.
If they go into a stall alone, make sure they don't lock the door (unless you feel they're clear headed enough to know how to unlock it. Simply hold it closed--even if you have to make an excuse about the lock. Realize some folks like to "play" in the bathroom--everything from playing with their feces, to clogging up the toilet with excess paper, to self play, so don't let it surprise you. If you feel uncomfortable with all this, ask for someone who usually takes them to the restroom to do so. It's perfectly okay if you feel ill-prepared.
If they start telling you their life story, listen, but realize part of it or all of it might not be real. If you need to leave--try to find a place to interject, "I have to go to the kitchen (for example) and say good-bye. If you can lead them over to a group or something they can do, then do that and get them involved before you step away. Sometimes this is not possible, and they can be difficult to disengage. Treat them with respect, but realize they might not grasp the subtleties of conversation and let you leave without you being assertive.
Realize they might "lift" your rings or wallet out of your purse--out of curiosity. Some are collectors, but you might want to double check things before you leave.
If they start asking repeated questions, "Is my husband here?"
It's best to say something along the lines of, "You really loved him, didn't you?" or "What did you two like to do together?" Don't confront or argue--but do allow them to talk about that person because they probably do miss them.
After a few visits, you can decide if you should say goodbye, or if that upsets them. Don't feel bad if you need to simply slip away.
Always, always, always talk to the staff--everyone--kitchen help, bathers, nursing staff--everyone. You need them to be your friends. They need to know you know them by name. They're more likely to treat your loved one well if you treat them well. They're also less likely to do something less than appropriate if you know their name.
Thank them for all they do. No one is ever compensated enough to care for another human being. Genuine thanks is a way of showing honor.
By knowing a few simple strategies and understanding how our Alzheimer's, dementia, neuro-impaired process information, we can enjoy a calmer, more meaningful visit for everyone.
Carol D. O'Dell
Author of Mothering Mother; A Daughter's Humorous and Heartbreaking Memoiravailable on Amazon
www.mothering-mother.com.
www.Kunati.com
Whether your loved one lives at home and you're their primary caregiver, or if they're in a care facility, knowing how to approach them is a crucial skill for all involved.
Sometimes they don't approach them at all.
They're uncomfortable, so they stay across the room and avoid eye contact. Some people don't even go to visit their loved ones. That's sad, because they're just scared and don't know exactly what to do.
Here area few simple steps to make this situation more comfortable for everyone:
If you have or can get a name tag, it can help. Wear your name tag since many dementia patients can still read and it reminds them who you are.
Approach a dementia or Alzheimer's patient calmly, extend your hand, but realize they might not know what to do with it. If they're in a wheelchair, bend your knees and meet them at their level. If you're much taller, try and make yourself an equal.
Don't come head on--even in nature, this is considered aggressive my most mammals.
Stand a little to their side--so they feel they have some air to breathe and an escape path if they feel threatened. Also realize that if you come up behind them or directly to their side, they might not see or hear you and you may startle them. They may react by a scream or even try to hit you if they're agitated, so make sure they know you're coming up to them, then step a little to the side so they have some breathing room and don't feel "attacked." Remember the old fight or flight reaction--some people might try to run away from you if you startle them, whereas others may try to bop you a good one!
Say your name clearly and ask them theirs. If you know their name then don't ask them--tell them their name. They shouldn't feel tested or put on the spot.
"Hi, my name is Carol, and your name is Lily. It's nice to meet you."
If they're shaking your hand and want to continue to hold it, then allow them to. Some dementia/neurological folks like touch and are quite tactile. They might touch your clothes or your hair, but realize that if it goes too far, it's because they might not be able to judge appropriateness. Simply gently take their hand from the unwanted are and either hold their hand, or let go and back up just a little without drawing attention to the unwanted behaviour. Like a little kid, people like to do things they're not supposed to.
If they don't seem to want to shake hands, respect that. Some dementia/neuro-impaired folks abhor touch, so don't take it personal.
If they lose their attention and aren't interested in you, don't take it personal.
If they aren't smiling, don't take it personal.
If you are assisting them in the restroom or dressing, also stand to the side. Our elderly folk don't have as good peripheral vision and if you stand directly to their side, they may feel more of a sense of privacy. You can also leverage yourself better with one arm holding their elbow up to their shoulder and the other across their back. Remind them you're still there, but be quiet if they need their privacy.
If they go into a stall alone, make sure they don't lock the door (unless you feel they're clear headed enough to know how to unlock it. Simply hold it closed--even if you have to make an excuse about the lock. Realize some folks like to "play" in the bathroom--everything from playing with their feces, to clogging up the toilet with excess paper, to self play, so don't let it surprise you. If you feel uncomfortable with all this, ask for someone who usually takes them to the restroom to do so. It's perfectly okay if you feel ill-prepared.
If they start telling you their life story, listen, but realize part of it or all of it might not be real. If you need to leave--try to find a place to interject, "I have to go to the kitchen (for example) and say good-bye. If you can lead them over to a group or something they can do, then do that and get them involved before you step away. Sometimes this is not possible, and they can be difficult to disengage. Treat them with respect, but realize they might not grasp the subtleties of conversation and let you leave without you being assertive.
Realize they might "lift" your rings or wallet out of your purse--out of curiosity. Some are collectors, but you might want to double check things before you leave.
If they start asking repeated questions, "Is my husband here?"
It's best to say something along the lines of, "You really loved him, didn't you?" or "What did you two like to do together?" Don't confront or argue--but do allow them to talk about that person because they probably do miss them.
After a few visits, you can decide if you should say goodbye, or if that upsets them. Don't feel bad if you need to simply slip away.
Always, always, always talk to the staff--everyone--kitchen help, bathers, nursing staff--everyone. You need them to be your friends. They need to know you know them by name. They're more likely to treat your loved one well if you treat them well. They're also less likely to do something less than appropriate if you know their name.
Thank them for all they do. No one is ever compensated enough to care for another human being. Genuine thanks is a way of showing honor.
By knowing a few simple strategies and understanding how our Alzheimer's, dementia, neuro-impaired process information, we can enjoy a calmer, more meaningful visit for everyone.
Carol D. O'Dell
Author of Mothering Mother; A Daughter's Humorous and Heartbreaking Memoiravailable on Amazon
www.mothering-mother.com.
www.Kunati.com
Thursday, February 14, 2008
Spice Up Valentine's or Any Day
Dr. Christine Northrup, Oprah's gynecologist on speed dial and author of Women's Bodies, Women's Lives, and the Wisdom of Menopause suggests that you spend 30 minutes three time a week in "self love."
Yes, that's right. The M word.
Now, I can only speak for myself here, but unless "self love" includes eating a bag of Dove chocolates, painting my toenails and thumbing through a magazine, I'm going to have about 27 minutes to kill.
It's not like I have to woo myself or assure myself that I'll respect me in the morning...
As a caregiver, mother, daughter, sandwich generationer, pet "mom," I have to tell you, thirty uninterrupted minutes is hard to come by.
(pah dum,dum)
I figure I can blog about this if Oprah can discuss it at 4:00 in the afternoon while I'm making chicken pot pie.
But a healthy love life is important.
Being a passionate person spills over into everything in your life--how you dress, walk, what you choose to eat, how genererous you are with your timea and energies, how affectionate you are to all living creatures--not to mention the effects giving and receiving love has on your heart, immune system, psychological, emotional and spiritual foundation.
I thought I'd suggest a few tips for revving up the ole' love life for couples who also caregivers, raise kids, and walk dogs.
Mom’s Home—Quick, Lock the Bedroom Door!
Tips on How to Enjoy Your Relationship Even if Your Mom
Lives With You
· Put a lock on your bedroom door—and use it
· Sneak around—intimacy doesn’t just have to happen in the bedroom. Be playful! Flirt!
· Nix the old t-shirt and sweats and wear attractive PJs—they don’t have to be overly sexy to be attractive.
· Stay affectionate--even if you have to make yourself at first—call each other during the day just for a “Hi, and I love you,” hug and kiss hello and goodbye, cuddle on the couch, call each other affectionate names/ take baths or showers together (you do remember those?)
. Take short walks together—even 5 or 10 minutes of fresh air is invigorating and gives you a chance to talk
· Plan a surprise—sneak out to the yard after dark to cuddle on a quilt under the stars with cups of hot chocolate
. Laugh! Rent a comedy, pop some popcorn and sit ont the couch together--not in dueling recliners
· Don’t sweat it if you aren’t in a lovey-dove mood--caregiving is stressful and there are seasons in life. Remember though, a healthy love life is healing, satisfying and stress relieving—and better for you than a bottle of Scotch!
Now, go have some chocolate.
Happy V Day!
~Carol D. O'Dell
Author of Mothering Mother: A Daughter's Humorous and Heartbreaking Memoir,
available on Amazon and in most bookstores
Kunati Publishing
Yes, that's right. The M word.
Now, I can only speak for myself here, but unless "self love" includes eating a bag of Dove chocolates, painting my toenails and thumbing through a magazine, I'm going to have about 27 minutes to kill.
It's not like I have to woo myself or assure myself that I'll respect me in the morning...
As a caregiver, mother, daughter, sandwich generationer, pet "mom," I have to tell you, thirty uninterrupted minutes is hard to come by.
(pah dum,dum)
I figure I can blog about this if Oprah can discuss it at 4:00 in the afternoon while I'm making chicken pot pie.
But a healthy love life is important.
Being a passionate person spills over into everything in your life--how you dress, walk, what you choose to eat, how genererous you are with your timea and energies, how affectionate you are to all living creatures--not to mention the effects giving and receiving love has on your heart, immune system, psychological, emotional and spiritual foundation.
I thought I'd suggest a few tips for revving up the ole' love life for couples who also caregivers, raise kids, and walk dogs.
Mom’s Home—Quick, Lock the Bedroom Door!
Tips on How to Enjoy Your Relationship Even if Your Mom
Lives With You
· Put a lock on your bedroom door—and use it
· Sneak around—intimacy doesn’t just have to happen in the bedroom. Be playful! Flirt!
· Nix the old t-shirt and sweats and wear attractive PJs—they don’t have to be overly sexy to be attractive.
· Stay affectionate--even if you have to make yourself at first—call each other during the day just for a “Hi, and I love you,” hug and kiss hello and goodbye, cuddle on the couch, call each other affectionate names/ take baths or showers together (you do remember those?)
. Take short walks together—even 5 or 10 minutes of fresh air is invigorating and gives you a chance to talk
· Plan a surprise—sneak out to the yard after dark to cuddle on a quilt under the stars with cups of hot chocolate
. Laugh! Rent a comedy, pop some popcorn and sit ont the couch together--not in dueling recliners
· Don’t sweat it if you aren’t in a lovey-dove mood--caregiving is stressful and there are seasons in life. Remember though, a healthy love life is healing, satisfying and stress relieving—and better for you than a bottle of Scotch!
Now, go have some chocolate.
Happy V Day!
~Carol D. O'Dell
Author of Mothering Mother: A Daughter's Humorous and Heartbreaking Memoir,
available on Amazon and in most bookstores
Kunati Publishing
Monday, February 11, 2008
What's It Like To Be With Someone as They Die?
I wanted to know what it was going to be like.
I knew my mother was most likely going to die at home--in my home.
I had only experienced death in a hospital setting. Different animal.
Living with dying and death is something I had to learn how to do.
In that order. Dying is sometimes a slow process.
Dying is aching, doubting, hoping.
Death is final.
I wrote about my mother’s death in Mothering Mother.
I wrote about it moment-by-moment. I wrote it that way–sitting beside her, journal in hand. A word, or thought, or phrase that represented hours, days, and weeks as my mother took her “good old time.”
She made sure I didn’t miss a thing.
And I didn’t. I glued myself there.
I was scared. Didn’t know if I could do it.
But as we got there–almost three years of her living (and dying) with me as Parkinson’s and Alzheimer’s took its toll, I found that I was ready.
I had to be there. Follow through. Finish what I promised.
I wrote about it because I could find so little on it.
So little about something we all must do.
Sorry to be so morbid here, but I think it’s important.
Our society is so youth oriented that we don’t look at the full picture–birth to death.
Death was so much a part of people’s lives in the dark ages that they came up with a Latin phrase they used to write over their doors.
Momento Mori. It means, “We all must die.”
It’s known in literature to denote “symbols” of death–black, the skull, the sickle, etc. It dates back to the Roman times, to a general who had a slave walk behind him as he paraded down the streets celebrating his latest victory. The slave would call out, “Momento mori!” Meaning, look behind you, you are but a mortal.
We tend to remember the Carpe Diem version,“Seize the Day!”
It’s the end of “Eat, Drink and Be Merry,” we forget,“for tomorrow ye may die.”
Heavy stuff, I know. But if you’re about to face this, as I had to face this, you might be ready for a frank discussion
That’s why I say we look at it in February and leave the frivolity for May.
We have to incorporate living and dying into our lives in a healthy way. To embrace, and let go, and embrace again.
Readers of Mothering Mother know about my push and pull, mother-daughter relationship. But there was so much that occured before then. Relationships are difficult to translate to the page. So much history, so many tangles and layers.
It took a long time to get to that place–the love, forgiveness, acceptance place. And then, when I finally stopped trying to “fix” us, we were well into the dying process.
We tend to hero-ize or villanize people in our lives.
Good and evil, wicked witch, white knight.
Especially when we’re young–everyone falls into one category or another. The ambiguities and juxtapositions of life come over time.
Daddy was my hero.
I needed one, and he did a good job filling it.
But that made his passing deeper, and bitter-sweet.
Grieving is not only about the five stages of grief. (Kubler Ross–denial anger, barganing, depreesion and acceptance).
We think we can check them off like a grocery list.
No, it’s a circle. We keep going round and round, double back, get stuck, leap frog, only to find ourselves back at square one. But each time we rail against, drown in it, we’ve made progress. Minute progress.
~Carol D. O’Dell
Author of Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir
available on Amazon and in most bookstores
http://www.mothering-mother.com/
Kunati Publishing
~Carol D. O’Dell
Author of Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir
available on Amazon and in most bookstores
http://www.mothering-mother.com/
http://www.kunati.com/
I knew my mother was most likely going to die at home--in my home.
I had only experienced death in a hospital setting. Different animal.
Living with dying and death is something I had to learn how to do.
In that order. Dying is sometimes a slow process.
Dying is aching, doubting, hoping.
Death is final.
I wrote about my mother’s death in Mothering Mother.
I wrote about it moment-by-moment. I wrote it that way–sitting beside her, journal in hand. A word, or thought, or phrase that represented hours, days, and weeks as my mother took her “good old time.”
She made sure I didn’t miss a thing.
And I didn’t. I glued myself there.
I was scared. Didn’t know if I could do it.
But as we got there–almost three years of her living (and dying) with me as Parkinson’s and Alzheimer’s took its toll, I found that I was ready.
I had to be there. Follow through. Finish what I promised.
I wrote about it because I could find so little on it.
So little about something we all must do.
Sorry to be so morbid here, but I think it’s important.
Our society is so youth oriented that we don’t look at the full picture–birth to death.
Death was so much a part of people’s lives in the dark ages that they came up with a Latin phrase they used to write over their doors.
Momento Mori. It means, “We all must die.”
It’s known in literature to denote “symbols” of death–black, the skull, the sickle, etc. It dates back to the Roman times, to a general who had a slave walk behind him as he paraded down the streets celebrating his latest victory. The slave would call out, “Momento mori!” Meaning, look behind you, you are but a mortal.
We tend to remember the Carpe Diem version,“Seize the Day!”
It’s the end of “Eat, Drink and Be Merry,” we forget,“for tomorrow ye may die.”
Heavy stuff, I know. But if you’re about to face this, as I had to face this, you might be ready for a frank discussion
That’s why I say we look at it in February and leave the frivolity for May.
We have to incorporate living and dying into our lives in a healthy way. To embrace, and let go, and embrace again.
Readers of Mothering Mother know about my push and pull, mother-daughter relationship. But there was so much that occured before then. Relationships are difficult to translate to the page. So much history, so many tangles and layers.
It took a long time to get to that place–the love, forgiveness, acceptance place. And then, when I finally stopped trying to “fix” us, we were well into the dying process.
We tend to hero-ize or villanize people in our lives.
Good and evil, wicked witch, white knight.
Especially when we’re young–everyone falls into one category or another. The ambiguities and juxtapositions of life come over time.
Daddy was my hero.
I needed one, and he did a good job filling it.
But that made his passing deeper, and bitter-sweet.
Grieving is not only about the five stages of grief. (Kubler Ross–denial anger, barganing, depreesion and acceptance).
We think we can check them off like a grocery list.
No, it’s a circle. We keep going round and round, double back, get stuck, leap frog, only to find ourselves back at square one. But each time we rail against, drown in it, we’ve made progress. Minute progress.
~Carol D. O’Dell
Author of Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir
available on Amazon and in most bookstores
http://www.mothering-mother.com/
Kunati Publishing
~Carol D. O’Dell
Author of Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir
available on Amazon and in most bookstores
http://www.mothering-mother.com/
http://www.kunati.com/
Monday, July 2, 2007
Care Giving--Care Receiving
We've now turned the words "Care Giver" into a compound word.
Caregiver or caregiving is now written as one word.
Two words smeared together. Apropos. Two lives smeared together.
A Jackson Pollack painting is a great metaphor for Alzheimer's--layers of chaos--some beautiful, others haunting.
I wrote in my book, MOTHERING MOTHER that I thought that caregiving was such a sterile term. Mother has bonded well with her child makes me want to ask if bail has been posted.
I used to teach my daughters that family was an acronym for "Father and Mother, I Love You." It sounded really sweet when they were four and five years old.... Now they roll their eyes and give me a smirk.
Now I have a new word--Care Receiver.It's a two-worder. It looks funny as one word:Carereceiver. Care-receiver.
I prefer, "Loved One."
I'd like to be referred to as the loved one--the one who is loved.
Giving and receiving are reciprocal terms.Someone smiles, the other tears...or just sighs.
m
Carol D. O'Dell, author of Mothering Mother, available at Amazon
Caregiver or caregiving is now written as one word.
Two words smeared together. Apropos. Two lives smeared together.
A Jackson Pollack painting is a great metaphor for Alzheimer's--layers of chaos--some beautiful, others haunting.
I wrote in my book, MOTHERING MOTHER that I thought that caregiving was such a sterile term. Mother has bonded well with her child makes me want to ask if bail has been posted.
I used to teach my daughters that family was an acronym for "Father and Mother, I Love You." It sounded really sweet when they were four and five years old.... Now they roll their eyes and give me a smirk.
Now I have a new word--Care Receiver.It's a two-worder. It looks funny as one word:Carereceiver. Care-receiver.
I prefer, "Loved One."
I'd like to be referred to as the loved one--the one who is loved.
Giving and receiving are reciprocal terms.Someone smiles, the other tears...or just sighs.
m
Carol D. O'Dell, author of Mothering Mother, available at Amazon
Tuesday, June 19, 2007
Mothering Mother--The Truth Behind the Book
Mothering Mother is my first book. It's my first book published, not the first book I wrote. Like most writers, I have a couple of "dry runs" in the desk drawer. Mothering Mother was published first because I needed to understand myself and my role as daughter, mother, wife and woman. And if I needed it, I knew others did as well.
After seven years of writing and publishing, my own artistic journey was put on hold as my mother moved in. Caregiving is all encompassing and I didn't have enough brain cells to create fiction. So, I did what an artist does.
I turned my surrounding, my present condition into my art. Artists have to create. Boundaries create channels for energy. What I thought was a set back to my writing and my artist self turned out not to be a set back after all.
It wasn't easy either. Writing (or eating, bathing, having a life whatsoever) wasn't easy around my mother. She could suck the air out of tornado. I had to fight for any moment for myself.
I wrote in snatches for over two years--I'd run to the computer and type in a few lines. I'd write on the back of an envelope and stuff in my pocket. I wrote in my thoughts. The irony was that I was too tired to edit my thoughts. I told the truth--the raw, honest, gutsy, imperfect truth. Because I was too exhausted and frustrated not to.
Artists struggle with how to create art in the midst of life and reponsibilities. We struggle with how to tell, to show the truth. We struggle with how to be authentic and how to create beauty, clarity, flow and insight. We do that best when we don't (or can't) get in our own way.
.
After seven years of writing and publishing, my own artistic journey was put on hold as my mother moved in. Caregiving is all encompassing and I didn't have enough brain cells to create fiction. So, I did what an artist does.
I turned my surrounding, my present condition into my art. Artists have to create. Boundaries create channels for energy. What I thought was a set back to my writing and my artist self turned out not to be a set back after all.
It wasn't easy either. Writing (or eating, bathing, having a life whatsoever) wasn't easy around my mother. She could suck the air out of tornado. I had to fight for any moment for myself.
I wrote in snatches for over two years--I'd run to the computer and type in a few lines. I'd write on the back of an envelope and stuff in my pocket. I wrote in my thoughts. The irony was that I was too tired to edit my thoughts. I told the truth--the raw, honest, gutsy, imperfect truth. Because I was too exhausted and frustrated not to.
Artists struggle with how to create art in the midst of life and reponsibilities. We struggle with how to tell, to show the truth. We struggle with how to be authentic and how to create beauty, clarity, flow and insight. We do that best when we don't (or can't) get in our own way.
.
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