Friday, February 22, 2008

How to Approach Someone With Alzheimer's or Dementia

Approaching someone with dementia or Alzheimer's takes a little finesse. Too many folks charge right up to them and get in their "personal space," perhaps because they don't realize that person's with physical or neurological challenges still do have and need personal space.

Whether your loved one lives at home and you're their primary caregiver, or if they're in a care facility, knowing how to approach them is a crucial skill for all involved.

Sometimes they don't approach them at all.
They're uncomfortable, so they stay across the room and avoid eye contact. Some people don't even go to visit their loved ones. That's sad, because they're just scared and don't know exactly what to do.

Here area few simple steps to make this situation more comfortable for everyone:

If you have or can get a name tag, it can help. Wear your name tag since many dementia patients can still read and it reminds them who you are.

Approach a dementia or Alzheimer's patient calmly, extend your hand, but realize they might not know what to do with it. If they're in a wheelchair, bend your knees and meet them at their level. If you're much taller, try and make yourself an equal.
Don't come head on--even in nature, this is considered aggressive my most mammals.

Stand a little to their side--so they feel they have some air to breathe and an escape path if they feel threatened. Also realize that if you come up behind them or directly to their side, they might not see or hear you and you may startle them. They may react by a scream or even try to hit you if they're agitated, so make sure they know you're coming up to them, then step a little to the side so they have some breathing room and don't feel "attacked." Remember the old fight or flight reaction--some people might try to run away from you if you startle them, whereas others may try to bop you a good one!

Say your name clearly and ask them theirs. If you know their name then don't ask them--tell them their name. They shouldn't feel tested or put on the spot.

"Hi, my name is Carol, and your name is Lily. It's nice to meet you."

If they're shaking your hand and want to continue to hold it, then allow them to. Some dementia/neurological folks like touch and are quite tactile. They might touch your clothes or your hair, but realize that if it goes too far, it's because they might not be able to judge appropriateness. Simply gently take their hand from the unwanted are and either hold their hand, or let go and back up just a little without drawing attention to the unwanted behaviour. Like a little kid, people like to do things they're not supposed to.

If they don't seem to want to shake hands, respect that. Some dementia/neuro-impaired folks abhor touch, so don't take it personal.
If they lose their attention and aren't interested in you, don't take it personal.
If they aren't smiling, don't take it personal.

If you are assisting them in the restroom or dressing, also stand to the side. Our elderly folk don't have as good peripheral vision and if you stand directly to their side, they may feel more of a sense of privacy. You can also leverage yourself better with one arm holding their elbow up to their shoulder and the other across their back. Remind them you're still there, but be quiet if they need their privacy.

If they go into a stall alone, make sure they don't lock the door (unless you feel they're clear headed enough to know how to unlock it. Simply hold it closed--even if you have to make an excuse about the lock. Realize some folks like to "play" in the bathroom--everything from playing with their feces, to clogging up the toilet with excess paper, to self play, so don't let it surprise you. If you feel uncomfortable with all this, ask for someone who usually takes them to the restroom to do so. It's perfectly okay if you feel ill-prepared.

If they start telling you their life story, listen, but realize part of it or all of it might not be real. If you need to leave--try to find a place to interject, "I have to go to the kitchen (for example) and say good-bye. If you can lead them over to a group or something they can do, then do that and get them involved before you step away. Sometimes this is not possible, and they can be difficult to disengage. Treat them with respect, but realize they might not grasp the subtleties of conversation and let you leave without you being assertive.

Realize they might "lift" your rings or wallet out of your purse--out of curiosity. Some are collectors, but you might want to double check things before you leave.

If they start asking repeated questions, "Is my husband here?"
It's best to say something along the lines of, "You really loved him, didn't you?" or "What did you two like to do together?" Don't confront or argue--but do allow them to talk about that person because they probably do miss them.

After a few visits, you can decide if you should say goodbye, or if that upsets them. Don't feel bad if you need to simply slip away.

Always, always, always talk to the staff--everyone--kitchen help, bathers, nursing staff--everyone. You need them to be your friends. They need to know you know them by name. They're more likely to treat your loved one well if you treat them well. They're also less likely to do something less than appropriate if you know their name.

Thank them for all they do. No one is ever compensated enough to care for another human being. Genuine thanks is a way of showing honor.

By knowing a few simple strategies and understanding how our Alzheimer's, dementia, neuro-impaired process information, we can enjoy a calmer, more meaningful visit for everyone.

Carol D. O'Dell
Author of Mothering Mother; A Daughter's Humorous and Heartbreaking Memoiravailable on Amazon
www.mothering-mother.com.
www.Kunati.com

2 comments:

Rick Frea said...

I found your blog through your post on Wendy's. I don't have an alzheimer's or dementia, but I work in a hospital with these patients. You provide some excellent advice that will have me thinking twice of how I approach patients.

My grandma was in a wheelchair at the end of her life, and she would make sure that I got down to her level. It's good to be reminded of this again, because most of my patients are in bed or wheelchairs, their faces much lower than mine.

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